Me at 90lbs a month before the ileostomy surgery (2004) |
Hopefully you won't get to this point but here's what I ate during my 3 months with an ileostomy.
cranberry juice
grape juice (cleans out intestinal blockages)
high sodium food (normally absorbed in the large intestine)
high potassium food - bananas, orange juice, apricot juice, grapefruit juice, squash, potatoes, tomato sauce, smooth peanut butter (normally absorbed in the large intestine)
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Veggie chips
pizza crust (causes blockage)
calzone (causes blockage)
scrambled eggs/omelets (will make the bag fill with gas)
mushrooms
corn
nuts
high fiber/gassy foods
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- You are more likely to get intestinal blockages which are incredibly painful during the ileostomy and months right after the J-pouch reconnective surgery. Drinking grape juice and taking a warm bath can remove an intestinal blockage. If it doesn't go away within an hour you need to get to an ER.
- You will probably have to empty the bag at least once during the night
- Don't roll over and lay on the bag during sleep, it may burst!
- Try not to eat a couple hours before sleep
- Make sure to drink plenty of water and take plenty of potassium/sodium. These are normally absorbed in the large intestine.
- Get a doctor's note before flying and attempting to bring the ileostomy scissors/kit on a plane.
- The stoma may change in size over time; make sure to check the size of it when you change the bag. If the hole in the bag for it is too large your skin may get irritated/burned.
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Main Page
What is Ulcerative Colitis
Ulcerative Colitis
Ileostomy
J-Pouch
I am starting an Ulcerative Colitis/Ileostomy/J-pouch support group for the San Francisco Bay area. If you are interested, please email me at
colitis@willperone.net
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